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Friday, 3rd September 2010

FAMILY RAISING CASH FOR MUSCLE WASTING ILLNESS

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Published Date:
03 July 2009
AN ARBROATH family whose three sons suffer from a muscle wasting illness are organising a series of events to raise money to try to find a new treatment for the condition.
Daniel, James and John Mathieson all suffer from Duchenne muscular dystrophy, a condition where the muscles in the body waste away leaving it virtually impossible to move and sufferers often have a very short life expectancy.

Now the brothers, alo
ng with their mum, Yvonne, step dad, Norman, and sister, Claire, are organising various fund raising events to try to help the charity Action Duchenne raise £1 million so that research can be conducted into finding a new potential treatment or even a cure for the disease.

Norman and Yvonne are the main carers of the brothers. He says the support they have received so far has been brilliant and hopes people will come and support the cause at the events.

He said: "We have a car wash taking place at Tesco on July 11 and then the Saturday after we will be holding a bring and buy sale at our house in McGregor Walk.

"Then on July 26 from 10 a.m. we will be doing a sponsored walk from Friockheim to Arbroath, which we have raised nearly £700 for already.

"We would really appreciate if anybody could help in any way they can by sponsoring us on the walk or providing donations for our bring and buy sale.

"We also need a mini bus to take us to Friockheim on the sponsored walk so we would really appreciate it if anybody could help us with that."

Last month, the family travelled to the Scottish Parliament in Edinburgh to meet with MSPs to persuade them to free up money for research and treatments for Duchenne muscular dystrophy.

Norman says the trip was a success and that they have had positive feedback from the politicians that they met at the parliament.

He added: "Going to the lobby at the parliament was definitely worthwhile because we raised the awareness of Duchenne and how sufferers need more help.

"We got a positive response from the people we met and most of them said they would do as much as they can to help us."

If anybody would like to help or support the Mathieson's fund raising events they can email the family at normanmathieson@btinternet.com.



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  • Last Updated: 02 July 2009 12:04 PM
  • Source: Arbroath Herald
  • Location: Arbroath
 
 
 


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